Friday, March 27, 2015

A Gift to our Daughter


You wouldn't know it from this picture but Our daughter was born with a rare condition called Cri-du-Chat. The terms I hear most are developmently delayed & disabled all words which devastate me on the inside & her on the outside. Anyone could easily see it affects many aspects of her life. Some of those are her muscle tone, fine motor (like holding a pen), & her ability to concentrate. It's those simple things most of us never think about. NeeSee is seven years old & walks only about 20-30 steps at a time before she gets tired, she will only hold a pen for about 2 seconds before throwing it, so writing is a hard task for her; let alone other things that are required in first grade. She will flip books like they are a toy & its hard for her to play with toys appropriately. Eating is also task & very messy as she is learning to feed herself. Her foods are puréed or softened at every meal to ensure she doesn't choke. & that is barely scraping the bottom of the cake pan to get a peek into her world. 

As her mom it's my duty to look for ways to help improve this world & help her reach her fullest potential. I've had horse therapy on my mind for awhile as I've researched it can promote physical & social growth. It's been one of my dreams for her & I'm elated to report that she enjoyed her first lesson. I also have to take a moment & be grateful for how far we've come. When we first started out in the therapies arena, one of our goals was for NeeSee to be able to hold her head up. So you can see she's doing an amazing job at progressing, even if it is slowly. I know it's not easy for her but it looks like this one will be one she enjoys! 

In the end we're hoping Dynamite will help NeeSee with her muscle tone & it will promote growth in other areas as well. It's one of the therapies including OT & Speech that we incorporated into her weekly program.

It's an absolute joy to give this extra gift!